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THE FUTURE OF RARE DISEASES IN CANADA — REIMAGINING DISCOVERY, CARE, AND ACCESS

Rare diseases may be individually uncommon, but together they represent one of the most urgent challenges—and opportunities—in modern medicine, as well as a powerful opportunity for innovation.

As the National Strategy for Drugs for Rare Diseases (2024–2027) advances, this panel will bring together leaders from advocacy, policy, technology, and innovation to explore what progress has been made and what comes next.

Our Speakers:

  • Moderator: Bill Dempster, President, 3Sixty Public Affairs
  • Durhane Wong-Rieger, President & CEO, Canadian Organization for Rare Disorders
  • Ivan Terekhov, Director – Research Informatics, AI & Technology, CHEO Research Institute
  • Speaker to be confirmed, Vertex Pharmaceuticals

Join us for our February LSO Knowledge & Networking Breakfast, taking place during Rare Disease Awareness Month.

Date: Wednesday, February 11th, 2026

Date: Thursday, January 22, 2026
Time: 8:30 AM – 09:30 AM
 

REGISTER TODAY!

 

LSO Knowledge and Networking Breakfast - February 11th - Virtual

Register Now

  • Wednesday Feb 11 2026, 8:30 AM - 9:30 AM
  • Online
    Toronto, Ontario
    Canada